ESES had improved with the recent Onfi increase. Owen wasn't too happy about being at the hospital at first because he thought he was going to have to stay overnight. We brought his Bug and blankie that he sleeps with since we need him to sleep for part of the EEG, he thought that meant that we were staying overnight. Once he realized we were going home the same day, he was much more cooperative!
At this point Rod and I are relaxing a bit. We've been pretty stressed about the upcoming treatments. It's nice to know that we will have a bit of a break from all of it over the holidays (assuming the med weans go well). I'm also hoping reducing the medications will help with his motor coordination. We were planning on starting him with writing his letters for kindergarten, but right now he's really not physically capable. So, wish us well on the medication reductions!