Monday, September 30, 2013
Beads of Courage) My little brother has had so much done to him. He has seizures and had lots of ambulances. He's had a hole in his tummy to feed him. He's had a lot and this necklace PROVES it!
Owen: Yeah Morgan, be nice to me. I am running a seizure!
Sunday, September 29, 2013
Saturday, September 28, 2013
Friday, September 27, 2013
|Owen: "You beat the level!!"|
|The door is supposed to open inwards, not outwards!|
Our new house rule is NO slamming doors! Wait, that was our OLD house rule too!
Thursday, September 26, 2013
After the flight the boys received a code to sign up for Young Eagles membership. This gives them access to all sorts of information and videos about flight and being a pilot. They will also be notified about other events in our area. The boys came right home and signed up. Connor already has developed a plan to get his pilots license! Duncan was thrilled that he was able to fly a plane before he was old enough to drive a car. Devon was a little upset that she was too busy decorating a cake to participate, I think more air time will definitely be in our future.
Wednesday, September 25, 2013
It took Devon about 6 hours to decorate this cake. It then took about an hour for it be completely demolished at the party.
Tuesday, September 24, 2013
Enoch in the hospital, we have been hosting some of his siblings. Avi stayed over Saturday night. I sent the little girls to bed just after 8:00, sent them beck to bed a few more times before 9:00, and then went in a few more times to remind them to be quiet. When Devon went to bed just before midnight (she was up late finishing the Hobbit cake), this was what she found. So, of course, we had to take pictures!
Monday, September 23, 2013
|Sorry, I didn't get any "before" pictures of the food table.|
We had hobbits!
|Owen as Frodo (borrowing Merri's vest)|
|This little hobbit was afraid of the troll|
|The only hobbit with authentic hobbit hair!|
|I thought this was a Golem costume, but I guess he was a troll too!|
We had a lot of food that I didn't get good pictures of including One Ring Doughnuts, Smegal's Fish, Hobbit Bread, and Zambian Fry Bread (made by Judah) which was really good even if it was a little off topic. We also had games although several of those got rained out.
Devon made the Hobbit Hole cake (and looked away while it was being cut). I'll do a post soon with more pictures of the cake as I think it deserves a post of it's own.
Unfortunately, one thing we didn't have was Enoch as he was taken to the Emergency room this weekend with a ruptured appendix. I'm sure prayers for a quick recovery would be greatly appreciated!
As usual, I didn't get nearly as many pictures as I would have liked. We managed to keep Owen from eating anything other than his own food (by watching him like a hawk), but we still had a seizure last night after he fell asleep. We had to give him his rescue med after 4 minutes and it took another 4 minutes for the seizure to stop. I'm calling the neurologist to talk about possibly checking his medication levels sooner than the November visit as he hasn't been sleeping well and I think that is the biggest factor with the seizures. We've been told several times that his medication SHOULD make him sleepy, not wired. We've always noticed the opposite whenever we've increased meds though and I'm thinking the keto diet might be changing how he metabolizes his other drugs. We haven't made new changes to the diet, so I'm not sure what else could be contributing to them unless the diet just isn't going to work for us.
Yesterday was also my stepdaughter Cassi's birthday, although we didn't get to see her as flying to Kentucky isn't really feasible right now. I didn't get a post up yesterday, so I'll just say "Happy Birthday Cassi!", today instead.
Interestingly enough the last two times we had to give Owen his rescue meds were also sibling birthdays, Duncan's in May and Cameron's in July. I'm not sure exactly why Owen always seems to have seizures on Birthdays and holidays.