Tuesday, June 10, 2014
Owen is doing pretty well so far for a four year old boy confined to bed with electrodes stuck all over his head and chest. In other words wild and whiny. We won't get results until late morning about how his poor little brain is doing. That's when we'll develop our plan for the next few months.
Hopefully the only lab in our entire county will have figured out how to send Owen's latest lab results to our Doctor by tomorrow too since they have been having trouble with that lately. We've been on the phone for the last several days and they've only managed to find one of the results from the whole stack they ran. It's kind of hard to take Owen all the way to Seattle for a early morning, fasting blood draw. Especially when we can't let him go too long without eating on the ketogenic diet. When we complained about them not faxing the results to our doctor like the lab orders say, they informed us that wasn't their job. But they can't seem to get them to the doctor even when the doctor's office specifically calls and requests the results either. I guess next time I'll give them 3 days to run the tests and then call EVERY SINGLE DAY and ask them about the results until they just fax them to the doctor in the first place so they don't have to talk to me any more. Seriously? Why would we have a whole stack of labs run if the doctor never needs to know the results? But obviously I'm simply too stupid to understand how having a medical monopoly in my county improves medical care.
Anyway, hopefully we'll have good news on the EEG!