|Super Owen waiting to get his EEG leads|
|Super Sidekick Brenna had to test Owen's cape|
|All ready to start|
|The scratch on his face was from falling out of the hotel bed the night before|
|The stocking cap didn't make it the whole time|
|Riding the car around the ward while we packed up|
It's been about 5 weeks since we started weaning Owen's Onfi dose. Rod and I had noticed some troubling issues and were getting worried that the med wean wasn't going well. Owen has been doing a lot more of his "twitching" at night and he's having a lot of coordination issues again. The results of the scans were pretty much what we were afraid of. There were no seizures, but he had a lot of abnormal spike/wave discharge activity. So, we will be going back up on the Onfi and changing his Ketogenic ratio from 3:1 to 3.5:1. We are pretty sure that the seizure activity was under control with the diet AND the medications, but we're trying to see if upping the diet will enable us to start eliminating medications. At this point, I'm perfectly happy with seizure control any way we can achieve it. The long term goal is still to get seizure control with the diet alone and changing ratio might help with that. We'll be going in for another EEG in about 3 months and make more decisions based on how that one looks.